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Tag: Down Syndrome

Middle school student with Down syndrome to lead Buddy Walk in memory of camp counselors

Garden City News

Garden City, N.Y., seventh-grader Matthew Castellano will lead The National Down Syndrome Society Buddy Walk Sept. 25 that starts in New York’s Central Park. He’ll be with NDSS Ambassador John C. McGinley (from TV’s “Scrubs”), Chris Burke (from “Life Goes On), and others.

Matthew attends Camp Anchor, a Long Island town camp for youths and adults with a wide range of disabilities. Every camper at Camp Anchor (which stands for Answering the Needs of Citizens with Handicaps through Organized Recreation) has an individual counselor. Three young Anchor Camp counselors were killed in a car crash on their way to work July 15 — and Matthew and his group will be walking for them in the Buddy Walk.

Matthew and his group hope to raise $3,000 in the Buddy Walk.

The NDSS (National Down Syndrome Society) has chosen Matthew Castellano, to be this year’s “Self-Advocate Ambassador” for the New York City “Buddy Walk” in Central Park. Matthew is a 7th grader at the Garden City Middle School and attends Camp Anchor in Lido Beach, NY. Matthew and his team will be walking for his beloved camp Anchor staff counselors, Michael Mulhall, Jamie Malone and Paige Malone who were in a fatal car accident on July 15th, 2010 on their way to Camp Anchor. He will lead the walk along with celebrities, John C. McGinley from the TV show “Scrubs,” Chris Burke from the former TV show “Life Goes On” and several others. Together they will salute the amazing event participants who have raised money and awareness in support of individuals with Down Syndrome.

Help kickoff the NYC Buddy Walk in Times Square where 200 photos of individuals with Down Syndrome from all over the world were selected from thousands of photo submissions for the 2010 NDSS Times Square Video. The Times Square Video will be shown on the “MTV Plasma Screen.” NDSS will provide transportation from Times Square to the NYC Buddy Walk site at “The Great Hill” in Central Park.

via Middle School Student To Be “Self Advocate Ambassador” | www.gcnews.com | Garden City News.

Posted on July 23, 2010 | No Comments | Category: Down Syndrome | Tags: , , ,

Spanish soccer coach fulfills son with Down syndrome’s wish

Catholic News Agency

The coach of Spain’s world champion soccer team, Vicente del Bosque, is a man of few words and gestures. However, last week he experienced one of the most emotional moments of his life when he fulfilled the dream of his 21 year-old son Alvaro, who suffers from Down’s Syndrome, by allowing him to hold up the World Cup trophy to the applause of the team.

“My son changed my life,” Del Bosque has said on more than one occasion. Alvaro is his second son, and Del Bosque learned that he had Down’s Syndrome several weeks after his birth. “At first we cried a lot,” he told author Gemma Herrero for her book, “39 Stories of Solidarity Surrounding Sports,” but he added, “Now when I look back I think, we were so foolish.”

via Spanish soccer coach fulfills wish for Down’s Syndrome son :: Catholic News Agency (CNA).

Posted on July 21, 2010 | No Comments | Category: Down Syndrome | Tags: , , , ,

Autism and Summer: Summer Special Olympics

Nearly 3,000 athletes with autism, Down syndrome and other intellectual disabilities are headed to Nebraska for the 2010 Special Olympics USA National Games.

The Summer Games July 18-23 in Lincoln will feature athletes competing in 13 sports -  including swimming, soccer, track & field, bowling, golf, bocce, volleyball, gymnastics, tennis, powerlifting and  softball.

Organizers have erected a Special Olympics Town for the athletes, 1,000 coaches and 15,000 friends and family members expected to attend.

One feature – a 20-foot-long memory wall where people can write tributes to Special Olympics founder Eunice Kennedy Shriver, who died last year.

While this national event is huge – and the world Special Olympics next year in Athens will be even bigger, Special Olympics events are held nationwide and around the world.  (Sixteen Special Olympics soccer players showed the world just how talented they are during the World Cup.)  At any level, as the athletes compete, they change attitudes about intellectual disabilities, and they become more confident and empowered.

Do you have a family member competing in the Special Olympics? Everyone’s a winner in these Games!

via Pershing to be Special Olympics Town.

Posted on July 13, 2010 | No Comments | Category: Autism, Down Syndrome | Tags: , , , , ,

Down syndrome dancer is headed to Disney World

WTSP

Thalia Arvelaez, a teenager with Down syndrome, is at a dance camp in Tampa this week. In mid-July, she’ll be at Disney World, dancing for the National Down Syndrome Congress. In November, she heads to Argentina to dance and raise Down syndrome awareness. Thalia’s teacher says she is a joy to watch. Her mother says Thalia loves applause — and when people give her flowers!

Tampa, Florida – Among the tapping toes at this summer camp class at the Patel Conservatory, you’ll find a pair of fancy feet belonging to Thalia Arbelaez. She loves to dance-all types.

“I like ballet, hip-hop, jazz, tap,” Thalia starts ticking off the list.

Thalia knows she looks a bit different than her classmates and she refers to herself as “special”. The 17-year-old has Down syndrome, a genetic condition that changes a child’s development, and she was born with a host of health problems.

Alicia Arbelaez recalls what doctors told her shortly after her daughter’s birth. “The doctor come to tell me, ‘this child is never going to walk.’”

But walk Thalia did and dance lessons at age 2 soon followed.

via Down syndrome dancer builds bridges with her feet | Tampa Bay, St. Petersburg, Clearwater, Sarasota, FL | WTSP.com 10 Connects.

Posted on July 8, 2010 | No Comments | Category: Down Syndrome | Tags: , , , ,

Bicycling with special needs: Lose the Training Wheels Camp

WFMZ

TREXLERTOWN, Pa. — Learning how to ride a bike can be especially challenging for kids with special needs.

But the Eastern Pennsylvania Down Syndrome Center is trying to change that.

This year the group hosted a volunteer-driven camp to help children “lose the training wheels.”

via Anchors Away: Lose The Training Wheels – News Story – WFMZ Allentown.

Posted on July 7, 2010 | No Comments | Category: Autism, Caregiving, Down Syndrome | Tags: , , , , , ,

Special Needs: Taking the fear out of doctors’ visits

WHYY

Nobody looks forward to a dentist’s drill or giving a blood sample. But for people with special needs, these routine visits can be a cause for special terror. Often people with intellectual disabilities or autism get sedated or restrained so that they’ll stay still for a medical test. One Delaware mother came up with a better way.

via Taking the fear out of doctors’ visits | WHYY News and Information | WHYY.

Posted on July 2, 2010 | No Comments | Category: Autism, Down Syndrome | Tags: , , ,

Program could smooth a hard road to college for student with Down syndrome

Kansas City Star

A new program in Missouri is aimed at helping students with Down syndrome and other intellectual disabilities experience college and build skills that will take them from home to independence and employment.  It’s called THRIVE – for Transportation, Health, Responsibility, Independence, Vocation, Education. Read this Kansas City Star story about a possible participant in the THRIVE program.

Ask Mary Warm about her hope for her future, and she cocks her head. The bushy ponytail swings, the smile spreads across her face.

“I love kids, being around kids and hanging out with them, so I want to be a teacher,” said Warm, 18, a junior at Archbishop O’Hara High School in Kansas City.

For most teens Warm’s age, her goal is fairly easily reached with good grades in high school and four years of hard work in college. But for Warm, who has Down syndrome, a chromosomal disorder resulting in cognitive disabilities, it’s not as easy.

But the University of Central Missouri’s THRIVE program, which starts this fall, could well be a big step toward making it easier after she graduates from O’Hara.

via Program could smooth a hard road to college for student with Down syndrome – KansasCity.com.

Posted on June 18, 2010 | 1 Comment | Category: Down Syndrome | Tags: , , , ,

Down syndrome stories shared on “My Great Story”

National Down Syndrome Society

The National Down Syndrome Society has a fantastic new web feature, My Great Story, that tells the stories of some of the 400,000 people with Down syndrome living in the U.S. – often in their own words. There’s a place on the site for people to continue to share more great stories. Here’s the beginning of one of the stories, written by Sara Wolff of Pennsylvania:

Sara Wolff, The Public Speaker

Moscow, PA

My name is Sara Wolff. I am 24 years old and My Great Story is about my Public Speaking.

I’d first like to share a little bit about myself with you. I definitely have something unique about me—and that is an extra 21st chromosome, called Down syndrome… which, by the way, has never stopped me from doing anything!

I don’t think of myself as having “DOWN” syndrome but “UP” syndrome because I am an upbeat and positive person. I have been raised with the motto “Never” say “Never” and the words “I can’t” don’t exist.

via National Down Syndrome Society – Sara Wolff, The Public Speaker.

Posted on June 15, 2010 | 1 Comment | Category: Down Syndrome | Tags: , , ,

Golf for young adults with Down syndrome

La Manga Club

Here’s a post about a golf class for young adults with Down syndrome at a resort in Spain.

La Manga Club’s first golf course for youngsters from the ASIDO association recently came to an end with a Par 47 tournament and prize giving hosted by Golf Pro and Course Tutor, Mark Hook.

Every Thursday afternoon since last October, La Manga Club Golf Academy has been filled with young people eager to learn all the secrets and benefits of golf. A total of 10 students attended the course, during which they have worked on golf skills such as the swing, stance and build-up routine. The young golfers have not just improved their technical skills, but have also worked on concentration and focus, memory skills and psychological aspects such as self-esteem and social skills.

via Golf course for young people with Downs Syndrome finishes at La Manga Club | La Manga Club Official Blog for La Manga Resort in Murcia, Spain with Golf Holidays, 5 star hotel, tennis breaks, Spa La Manga Club.

Posted on June 15, 2010 | No Comments | Category: Down Syndrome | Tags: , , ,

Surfing in the Special Olympics?

Orlando Sentinel

In waist-deep water off Cocoa Beach, 32-year-old Dawn Blanchard is taking only the second surfing lesson of her life, yet she manages to stand, however briefly, on nearly every wave she catches. And each time she does, she flashes a double thumbs-up, beams joyously and announces, “I did it! I did it!”

This continues for two hours. Yet no one — not the surf instructors, not the considerable crowd of earnest spectators on the beach, certainly not Blanchard herself — seems to weary.

“It’s awesome,” said Deb Spence, a Special Olympics swim coach who cheers from the beach. “She’s actually doing a lot better than I did when I started.”

Blanchard is one of Spence’s Special Olympics swimmers, and this surf lesson is part of a grand experiment to try to introduce surfing as a Special Olympics sport. It’s a collaboration between Cocoa Beach’s iconic Ron Jon Surf Shop, which is picking up the tab, and Special Olympics Florida. The program launched a week ago with eight athletes, ages 18 to 43. All of them have intellectual disabilities, from Down syndrome to autism.

via Surfing in the Special Olympics? The seeds are being planted – OrlandoSentinel.com.

Posted on June 14, 2010 | 1 Comment | Category: Autism, Down Syndrome | Tags: , , , , ,